I’ve been asked on numerous occasions why I’m such an advocate for Fibro sufferers.
I’ve been practicing for almost 27 years and during that time, I’ve heard and seen horror story after horror story about Fibromyalgia. Yes, Fibromyalgia has been around for a long time, though it was given different names, the most common being Fibrocitis. The names might have changed over the years, but the symptoms have remained the same. The toll this illness has taken on people, their families, their loved ones and everybody in their circle has been enormous. The amount of money spent on pain meds, sleep meds, doctors visits etc etc is in the billions, yet people with Fibromyalgia are still stick
Medicine has yet to come up with effective therapy’s and all the drugs marketed for Fibro sufferers are really drugs that had been developed to treat other illnesses. The most common that you hear about all the time is Lyrica, which is really an anti-seizure medication. Cymbalta is an anti-depressive medication in the same universe as Prozac and Wellbutrin.
I’ve seen so much suffering that I finally decided that something has to be done and this is why I’ve become an advocate. I believe that the public has to be educated and aware as to what Fibromyalgia really is. Ask the average person and they haven’t a clue, or perhaps they’ll think that it’s that illness that causes pain. This is not good enough and just touches the surface.
I, therefore, spent much of my free time, speaking at seminars to the public about Fibromyalgia. I explain what is happening in the body, go over the many symptoms (probably 60 or more), give the public an idea of what research is really being done (too little) and lastly how Fibromyalgia has become a multi-billion dollar industry. (You just need to watch the television for 1/2 hour and chances are you’ll see an ad (many times more) for a Fibro medication.)
The sad part is that though some of these meds might be of some limited help, there is no med available that can stop this illness. Most are suffering, many horribly!
People and patients need to be educated, they can then start shouting louder at our law makers and start making noise. The louder we yell, the more we will be listened to and the more money will go into finding a solution for Fibro.
Next week: Fibro Symptoms 101